Lighting the way for children with medical complexity
Pediatric Palliative Care Coalition (PPCC) is a Pennsylvania-based statewide coalition providing information and resources for families of children with life-limiting conditions, and for the medical providers who support them.
The resources provided by PPCC are identified or created by dedicated volunteers, including health care professionals, parents, caregivers and community members with firsthand experience caring for children with life-limiting illnesses. If you are a medical provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you.
PPCC’s website holds practical toolkits, informative webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative care.
Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”
– Center to Advance Palliative Care (CAPC)
Chronic Home Ventilation: Helping Families Make Decisions
All PPC Webinars:
12:00PST/ 1:00MST/ 2:00CST/ 3:00EST
Archived Webinars are available for purchase.
Click HERE to register.
Perinatal Palliative Care:
Care Across the Continuum
The PPCC Firefly Chat is a series of interactive virtual discussions with parents and professionals that explore issues facing the pediatric and hospice palliative care community. FF Chats are free, but registration is required.
Click HERE to register.
LEARN, a PPCC program, helps families and medical professionals improve palliative care services for children with serious illness throughout Pennsylvania. All pediatric palliative and hospice care stakeholders in Pennsylvania are invited to be a part of this group.
Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers who are working with children with medical complexity.
Click HERE for latest newsletter.
Each of 5 participants created a short film that celebrated the legacy of their child and explored a range of key topics related to their grief journey and experience navigating palliative care for their child.
Registration Discounts are Available
There will be 10 webinars with topics focused on pediatric palliative and hospice care. CE is available for nurses and social workers. Discounts are available for groups and multiple webinar purchases.
Click HERE for the 2024 calendar.
This newest online PPCC resource is a list of frequently asked questions and answers about pediatric palliative and hospice care.
Topics include:
Pediatric Palliative Care, Pediatric Palliative Care Team, Pediatric Palliative Care and Insurance, Advocating for Your Child, Pediatric Hospice, Palliative Care vs. Hospice Care,
PPCC would like to thank our donors, members, and grantors for their generous support:
McElhattan Foundation • Jack Buncher Foundation • Kanarek Family Foundation
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
