Sarepta Therapeutics

Sarepta is a proud partner and supporter of ProFound, a professional network focused on amplifying disability leadership in the workforce. We were pleased to recently host ProFound leadership, Boston-area ProFound members and Sarepta employees to learn more about disability inclusion at work and Sarepta’s work to further embed disability into our DEI program. #Inclusion

We had a great time in Baltimore. Thank you to everyone who visited our booth and connected with our team at #ASGCT2024. See you next year! 

Happy #NationalNurses Week! We are taking time to celebrate our talented team of nurses at Sarepta and all of those working closely with rare disease communities. Your unwavering dedication to patients and their families truly makes a difference in their medical journey. Thank you, nurses! #NursesMakeTheDifference

Are you heading to #ASGCT2024 in Baltimore? Come visit our Sarepta team at booth #1299. We are excited to be among peers dedicated to gene and cell therapy.

In honor of National Nurses Week, we’re celebrating our colleague John Crane, RN, MSN, APRN, FNP-C. As a member of our Duchenne Nurse Educators team, John supports healthcare providers, patients and caregivers with education on Duchenne muscular dystrophy, the treatment process and Sarepta support programs. His journey to Sarepta included a 24-year run as a Navy nurse and multiple tours of duty across the globe. Throughout his nursing career, John has focused on educating other healthcare providers and maintaining his patients-first mindset. We’re excited to share John’s story in his own words. Read John’s story here: https://bit.ly/3QxFVBi #NursesMakeTheDifference #NationalNursesWeek #OneSarepta 

Congratulations to Dr. Jerry Mendell on being named to the inaugural TIME100 Health list! The list recognizes 100 individuals who most influenced global health this year, and it is an acknowledgement of Dr. Mendell’s impact, innovation and achievement. Dr. Mendell: Your unshakable conviction that we can and must do better for children living with rare genetic diseases gave hope to countless families and propelled a new era of therapy. You are a true pioneer in gene therapy for neuromuscular conditions and so worthy of this recognition.

Our team had a great time at the HRLF (Human Resource Leadership Forum) Leadership Awards celebrating Sarepta’s Executive Vice President and Chief People Officer Alison Nasisi, who was recognized as a nominee. Alison's leadership continues to be instrumental in shaping our One Sarepta culture through a people strategy that connects total rewards, wellbeing and professional development to ensure our Sarepta team can thrive both personally and professionally. She puts the vision, mission and values of Sarepta at the heart of every decision and program that HR drives at Sarepta, and we are so glad she is being recognized by the broader community for the exceptional leadership we see every day!

It’s DNA Day! Today we mark the discovery of DNA’s double helix structure in 1953 and successful completion of the Human Genome Project in 2003. DNA research has transformed our understanding of human biology, health and disease. As a leader in precision genetic medicine, we’re constantly looking for new ways to tackle rare genetic diseases. For us, every day is DNA Day. #DNADay24   

Congratulations to our own Alison Nasisi on this nomination! And thank you to HRLF for recognizing the inspirational leadership that we see every day.

Attending World Orphan Drug Congress this week? Sarepta’s Kate Donigan, PhD, will be participating in a panel discussion on newborn screening and genetic sequencing. As leaders in precision genetic medicine, Sarepta is committed to reducing barriers to diagnosis and increasing patients’ opportunities for early treatment. There is currently a tremendous amount of activity around expanding newborn screening panels to include additional genetic diseases, and this should be a great discussion!