Maternal Alloimmunization Foundation

Maternal Alloimmunization Foundation

Non-profit Organizations

Batavia, IL 35 followers

Providing advocacy, support & education to those affected by maternal alloimmunization & HDFN

About us

We are a fully patient run not for profit organization serving the women and families who are affected by maternal alloimmunization and hemolytic disease of the fetus and newborn.

Website
Www.alloimmunization.org
Industry
Non-profit Organizations
Company size
2-10 employees
Headquarters
Batavia, IL
Type
Nonprofit

Locations

Employees at Maternal Alloimmunization Foundation

Updates

  • We are so excited to be at FIGO's World Congress this week for the largest global event in gynaecology and obstetrics. We had a great time talking with health professionals and advocates all about Maternal Alloimmunization and HDFN and we are looking forward to the rest of the week at #FIGO23. Come meet us at booth NP10 to hear about how we are working to support families affected by HDFN!

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  • View profile for Rhiannon Wallace, graphic

    Practice Manager & OccHealth Director at ODYSSEY FAMILY PRACTICE LLC

    Make sure to register to join us for Maternal Alloimmunization Foundation's first annual virtual 5K for HDFN! Run or walk 5K between October 19-23 to support our mission of providing advocacy and support for moms, babies, and families affected by maternal alloimmunization and hemolytic disease of the fetus and newborn. Whether you prefer to take on the challenge alone or as a team, click the link below to sign up. We need your help to reach our goals and we can't wait to "see" you there! #5KforHDFN https://lnkd.in/gnX86Yjy

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  • We had a great time at Academy of Neonatal Nursing's Fall 2023 conference! Our team left filled with inspiration and an even deeper appreciation of all of the neonatal nurses and nurse practitioners we met throughout the week! Often, as the first healthcare professionals our babies interact with, they are a pivotal part of their care team and we were excited to have the opportunity to share who we are with them.

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  • We are so excited to see these Phase 2 results from Janssen! We believe that supporting advancing research is one of the main keys to improving patient outcomes for families affected by HDFN.

    We’re at the Fetal Medicine Foundation World Congress presenting new data from our Phase 2 trial for the treatment of pregnant individuals at high risk for early-onset severe hemolytic disease of the fetus and newborn, or HDFN - a rare disease where maternal antibodies, or alloantibodies, produced in a pregnant person’s immune system cross the placenta and attack fetal red blood cells. People impacted by HDFN currently experience a high treatment burden, such as repeated, invasive intrauterine transfusions (IUTs) that require access to specialty care and put the life of the fetus at risk. Results of our study showed 54 percent of participants who received our medicine experienced a live birth at or after 32 weeks without IUTs. Learn more: http://bit.ly/3CTg1R3 #AutoantibodyDisease #HDFN #MaternalFetalMedicine #FMFWorldCongress

  • The Maternal Alloimmunization Foundation represents families around the world who are affected by small red blood cell antibodies. The antibodies cause hemolytic disease of the fetus and newborn (#HDFN). HDFN can cause anemia in an unborn baby that requires blood transfusions while still in the womb. If left untreated, HDFN can result in severe anemia, fetal hydrops, and even death. After birth, HDFN often causes dangerously high bilirubin levels (#jaundice) which can require a blood product made from thousands of donors, or an exchange transfusion to prevent brain damage and lifelong disability. The babies may also require several transfusions after birth for delayed onset anemia. Without these lifesaving transfusions babies with severe anemia can suffer lifelong effects or organ failure leading to death. Arielle has D and C antibodies and has had two pregnancies affected by HDFN. Her twins, Christian and Cason, were saved by blood donors 5 times after they were born. Arielle’s youngest child, Michaela, had 8 life saving intrauterine blood transfusions (IUTs). With the help of her maternal fetal medicine team at Tufts Medical Center, blood donors saved Michaela’s life 8 times before she was even born.  After birth Michaela went on to receive five life saving transfusions under the care of Boston Children's Hospital’s Department of Hematology. However, even with the most talented medical teams behind her, without blood donors Michaela would not be here. Please consider joining us at one of our blood drives found here: https://lnkd.in/eS9u9vrv to celebrate World Blood Donor Day throughout the month of June. A ten minute blood donation could be what saves the life of a baby like Michaela. 

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